I just read all of the posts on this thread, and I am half-laughing, half-crying. Yes, Trisha, I have that leg thing - weak/tight/funny - on my right side, and in my arm too. Sometimes in my hands. It comes and goes, and when it comes back, I start googling ALS. I have googled ALS so many times, it's ridiculous, but truly, I have so many of those symptoms.
I have been thinking about it a lot because I am having a horrible month. I'm almost 2 years post (in Nov.), but this particular problem with the right-sided weakness popped up soon after removal. I don't remember it before removal. I've had it off and on for almost 2 years. When this weakness gets bad, certain other symptoms tend to get worse too: shakiness, and a feeling of general lack of coordination in my limb movements. My muscles tremble easily with slight exertion.
I also have a few muscles that twitch and spasm on me. I am trying to outrun the ALS fear this very day. I've looked again recently at myasthenia gravis, Parkinson's, and MS. But my MRI was clear 1 1/2 years ago when I was having all of these same symptoms. So I guess it's not MS. I've had good stretches of time when the leg/arm weakness goes away. Right now, when I go down stairs, I feel like I have to pay attention because I'm not sure if my thigh muscle will go out on me, and I'll fall.
Melanderso, if you're reading this, I remember you posting recently that you tried some progesterone cream and it seems to have set you back. I took Vitex for a month and then ended up with this horrible month. I just finished my period, so that doesn't help, but I was doing awful for weeks before my period started (even after stopping the Vitex).
If my problem is not having enough progesterone, shouldn't the Vitex help? Why has it spun me out of control?
I'm having vertigo, tendonitis, headache, and fatigue like I haven't had in a year. Granted, I haven't had any hormone testing done yet ($ issues) but I'm getting REALLY close to going in. Maybe it will shed some light on this. I'm afraid to try anything else to help with hormone balance.
Is it autoimmune? Is it ALS? Is it copper/zinc imbalance? Is it just hormones? Arghh.
Just had to vent there.
Hugs to you all,