I appreciate that you share your opportunity with us and everything! its awesome.
Whatever you do dont let them do steroid cream on your lips or anything else. That aggrevated my condition greatly.
I know what you are going through with the leave them alone theory. I have been doing it for 6 months.
Just a small look into what I have been doin:
-Anti candida diet. 3 months (stopped)
diet. 6 months (Right now i just minimize sugar)
-No lactose. 5 months (still doin)
-No gluten. 4 months. (stopped this for 2 months now)
-Prevent water from touching lips.
-No talking (for a month)
-No chewing (for a month)
-Daily walks in the wood.
-Room temperature beverages/water/tea etc.
-No irritants or anything that triggers contact chellitis.
-Juice fasting for three days.
- Took vitamin D, for vit. deficiency.
- Took probiotics..
Soo my point is that I know how you feel, I have been there.
Big crusts.. cant chew cant speak.
Really great for you that you can go to the hospital with a research team and everything.
What is that fluid buildup beneath your crusts after they have been sitting there for about two weeks. its nasty and it can get you sick.
Can they examine the state of your mucousa, how is your immune system. White bloodcel count. IGA.
Do you have any intestinal problems?
Do you often have soar throat, dry skin etc?
Do you have vit D deficiency.?
Do you have parasites?
Etc.. Could you share your information after the examination and the results and stuff.
I could post my blood results in that period aswell.
I might have more questions, hope you dont mind if I think about some more.
Things have improved for me :)