I'm really sorry to hear about your condition. Being that your doctor's diagnoses reveals a relation to the sun I wanted to post an article that a member by the name of Longterm found & posted on here long ago. It seems that you are in a very rare cooperative relationship with a dermatologist that is actually willing to try things that you suggest. Please click here for an article related to sun induced exfoliative cheilitis cases documented in El Salvador during the 1950s along with the treatment used to actually cure them.
Some of us have brought this article to the attention of some doctors--myself included--and it was disregarded most of the time. I hope it can help to guide you in the direction towards a cure that will work for you. Exfoliative cheilitis is not only rare, but it's also extremely resilient & variable.
Thanks for the article
wow...Hyaluronidase injections. It really looked like they worked. I uploaded two pics today:
I don't really think I have sun damage/keratosis on my lips. I think the Dermatologist mis-interpreted my peeling inflammation with sun damage (i had peeled my lips the night before). However, the left side seems to peel more often than the right side...Could it be that the skin is trying to grow over the keratosis and can't? I think i should get a second opinion...
I started peeling my lips over 20 years ago. I've lived overseas twice since then (in hot climates) and my symptoms disappeared. I had my peeling under control the last 10 years or so but in april of last year, I started peeling heavily again. I went to Central America in May and they peeled again...did I experience sun exposure/trauma?
This summer, the peeling stopped for 2-3 months and I was using my wife's "The Lip Balm" by LaMer. When the weather cooled this fall, I started having problems again, starting with the corners and mostly the left side. I've researched the LaMer stuff and it's full of nasty stuff not recommended for lips...
I notice that my mom has trouble with her lips as well...she's 1/2 filipino (i'm 1/4) so it might be a case of asian genetics and exposure to cold North American climates.
Anyway, I'm continuing with Triamcinolone cream & Epiceram. I'm following the example posted by #181350 My plan is to use Triamcinolone for a month and carefully clip detached skin. I'll use the Epiceram daily as well.