Some Cyber Support much needed :) 
Cure16
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Hi there,
I just really needed to reach out to others tonight. As many others here on these forums, I struggle with the chronic illnesses since I was 15 (now 38). I've tried lots of stuff, but haven't quite found the magical combination for my personal situation.
I won't give up, but the battle is long (as I'm sure so many of you can relate to) and I just needed some encouragement.
Like so many of you, I struggle with CFS/MCS, adrenal issues, mood issues, fibro, inner ear issues, gut issues.
My worst issue is my mood. Even though all the others ones are quite incapacitating, it's the sheer panic that stops me dead in my tracks.
That is what usually keeps me from making much progress in any protocols.
We all have our 'weak' spots in our bodies, and one of mine is in my ear/head area.
anytime I do any kind of detox, that area flares up so badly and causes me to have sheer panic (like someone is running after me with a knife) kinda thing.
and it prevents me from following thru on many things.
I think I need to start liver flushes. and maybe once that is working better, my body will be able to handle detoxing better and the huge panic won't be there as much.
I guess I'd love just to hear any advice, encouragement, success stories from people who were really ill and have made some progress. Maybe even people who were super sensitive and were able to be helped with Liver Flushes etc.
I guess right now,I am feeling just so scared and panicky and hopless that I just need some encouragement more than anything else.
thanks so much for your time. we are all in this together!
Cure16
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- Re: Some Cyber Support much needed :... yeshuafan
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This is a reply to # 2,254,966Hi Cure16,
If you want to help your liver, I know of two things that might help. One is ellagic acid. Do you eat much berries in your diet? Berries are a rich source of ellagic acid and can help the liver get rid of harmful substances.
more here...
Link
Another ingredient that is said to be really good for detoxing the liver is OKG. It is an amino acid that was developed in France. They found out when they attached two molecules of l-ornithine to alpha-ketoglutarate is had amazing properties that were not otherwise present with these substances. It helps with wound healing and it is used by hospitals in France to this day. Also, some MDs swear by it for detoxing the liver.
I support your healing! I will remain with you through your journey.
- Yeshua Fan
- Re: Some Cyber Support much needed :... joegrane
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This is a reply to # 2,254,974Yesua Fan, What is the connection with OKG and the liver? I've always associated it with Krebs cycle, ammonia reduction and GABA production. I typically take arginine AKG.- Re: Some Cyber Support much needed :... yeshuafan
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This is a reply to # 2,254,980Hi, probably the reason OKG works well for the liver is because of the relationship to the ammonia-glutamine cycle. Plain L-Glutamine doesn't work well if you have liver issues, because liver issues affect regulation of glutamine. Maybe too much ammonia is building up is why. Glutathione on the other hand is recommended, being a powerful antioxidant. Yet glutamine is fuel for the production of glutathione in the body. OKG also prevents the accumulation of ammonia, as you pointed out. It combines with the ammonia but also helps to restore glutamine levels, enabling your body to make more glutathione in a controlled way. Any thoughts on this?
more here...
http://www.psychiatrywithoutdrugs.co.uk/okg.htm
There may also be particular benefits from OKG in dealing with the side effects of many medications, or helping to detox them.
- Yeshua Fan
- Re: Some Cyber Support much needed :... joegrane
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This is a reply to # 2,255,132Thanks for the link and reply. I was aware of most of that but was not very familiar with ornithine, other than its relationship with the Krebs/ citric acid cycle.
- Re: Some Cyber Support much needed :... joegrane
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- Re: Some Cyber Support much needed :... yeshuafan
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- Re: Some Cyber Support much needed :... Cure16
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This is a reply to # 2,254,974Hi Yeshua Fan :)
Thanks for your kind reply. I don't eat a lot of berries. I'm more of a veggie person, but I do take camu camu powder. would this have that acid you are talking about?
The OKG sounds interesting. Right now I am taking Chinese bitters and eventually hope do start some liver flushes.
I like Yeshua/Jesus too, by the way. Whether you are a "Christian" or not, you gotta admit he lived a pretty amazing life and had some wonderful teachings. thanks for your thoughts.
Cure16- Re: Some Cyber Support much needed :... yeshuafan
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This is a reply to # 2,255,121It is good to hear you are including camu camu. In our day and age many people simply forget the importance of eating fruits or berries (or have trouble with fructose) so they end up with not enough vitamin C, citric acid , or ellagic acid. Camu camu is considered a Myrtaceae fruit, and while a few of these types have high levels of ellagic acid (jabuticaba, cambuci, and Surinam cherries) camu camu is one of the ones with somewhat lower level. But it is a good start!
more here...
Link
I think you will do well to flush your liver . It is all about balance. You need those good veggies you talked about and the acids in them but also a good balance with the types of acids that are in fruits or berries, and support from bitter herbs like those chinese bitters you are taking. You may feel sore for a few days after a flush but you will end up better off in the end.
As a Yeshua fan, it is good to hear that you like Yeshua too, but I feel I already knew that and that you were saying it for the others here. In any case, I will also add this for the others here. I think that when someone digs deep into Yeshua's teachings they find straightforward wise ways to live, and not all the annoying things people usually say in association with the words Jesus and Christian.
- Re: Some Cyber Support much needed :... yeshuafan
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- Re: Some Cyber Support much needed :... joegrane
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- Re: Some Cyber Support much needed :... joegrane
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This is a reply to # 2,254,966Sorry to hear that. You sound like a close female friend, except for the inner ear symptoms. She has/had decades of PTSD problems.
Ever try generous doses of magnesium, especially glycinate?
Do identify with the symptoms of high norepinephrine/adrenaline plus low GABA?
Do you like Epsom Salt, maybe in the more subtle foot bath. It is Mg sulfate. Sulfate is involved in breakdown of noradrenaline and related chemicals.
Is lithium quite low in hair or blood tests? I hear that it reduces the effects of noradrenaline, and more. It can have a more "chilled out" effect. It has done that quite nicely for me and my friend. You might like the subtle effect of just a mg or two of the Li supplements.
Do you get wiped out with fatigue and fog after stressful situations? Do you have other symptoms of adrenal insufficiency? Have you gotten tests such a blood pregnenolone or progesterone, 4x saliva cortisol, etc?
http://www.canaryclub.org/adrenal-article-980/706-cortisol-1-or-4.html
Ever try pregnenolone and/or adrenal cortex glandular for some mild adrenal cortex support?
Do you have various chemical or food sensitivities that suggest liver problems, maybe with phenols, etc?
Ever try GABA as a supplement, or maybe glutamine plus B6, Mg, maybe AKG?
In sensitive people I'd start with low doses and work up to typical levels. Many of them work better when taken several times per day?
Eventually my friend also got her silver-mercury Amalgam fillings removed and did heavy metal detox--Cutler.- Re: Some Cyber Support much needed :... Cure16
9 y
2,209
This is a reply to # 2,254,979Hi Cutler,
Thanks so much for replying :) It means a lot just to talk to someone else about all this. My family is probably getting sick of me :)
I have had cortisol saliva tests 6 years ago. Back then I was in the beginning stages of adrenal fatigue, now I'm assuming I'm in the later stages.
I find I have paradoxal reactions to many things so even if I take gaba or mag glyincate in more than small doses, they seem to throw some things out of balance. I do take a bit of mag and gaba though.
I'm hoping as I cleanse my liver , I'll be able to tolerate more stuff.
I never had any metal fillings, thank gawd. My mom did though, so I suspect that contributed to some of my issues,
My lithium levels were not even detectable on my hair test. I do have some li orotate here that I use every once in awhile and they do make me feel more relaxed and grounded.
I'm sorta torn about the adrenal glandual stuff. I hear some people say they are awesome and helped them heal, while others say to avoid them. do you have any thoughts on this?
Thanks again. I hope your friend is better.
Cure16- Re: Some Cyber Support much needed :... joegrane
9 y
2,162
This is a reply to # 2,255,119Yes those who are chemically sensitive often have to start with low doses.
Liver support sounds like a good idea.
Adrenal support can be tricky, especially for sensitive people. It is nice to be able to work with a doctor who does hormone balancing and get followup tests to see how your body is converting the upstream hormones.
In a person that needs adrenal cortex support the results can be really huge and the effects can be experienced in just a day or so in some people. There have been some really heart warming stories.
Unfortunately there are other cases, seemingly those with a history of panic attacks where they struggle to get useful amounts of hormone support on board.
Good luck
Joe
- Re: Some Cyber Support much needed :... joegrane
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- Re: Some Cyber Support much needed :... Cure16
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- Re: Some Cyber Support much needed :... archus
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This is a reply to # 2,254,966Cure16,
What is your diet like? Your body is definitely toxic, but it did not happen overnight so it will take some time. I know you can do this, take small baby steps towards healing your body and mind.
The suggestions and questions by other responders are great. I woul first be on raw organic plant based diet for one month, you can include some of the supplements mentioned above. Then I would do a colon cleanse, kidney cleanse and then do a liver flush. If things do not improve after a few flushes, you should do a water fast.
For ear issues you can warm Castor oil and let cool a bit and put a few drops in each ear and block your ears with cotton balls. This can be done everyday before bedtime.
Small steps, you can do it. Keep posting here, it is good to have the support from this community.
Archus- Re: Some Cyber Support much needed :... Cure16
9 y
2,197
This is a reply to # 2,255,005Thanks Archus :)
My diet is pretty limited. I sorta eat what I don't react to. I use to be vegan but I got extra sick when I was, so I had to start eating meat.
I eat pretty clean in terms of not eating a standard American diet and eating whole foods. I have tried the different paleo, gaps type diets as well.
I really do think the cleanses you suggested are what's needed right now. Thanks again for your support.
Cure16- Re: Some Cyber Support much needed :... joegrane
9 y
2,274
This is a reply to # 2,255,120Not at all surprised that you feel better when consuming some meat. Dr Hal Huggins, a pioneer in mercury free dentistry, said he stopped taking vegetarians as patients. An internal review of his success rate with them was too low.
The sickest of the chemically sensitive people in the detox groups often just tolerate a dozen foods, things like organic chicken, rice a couple of vegetables, etc.
Gluten free diet and GCF are two of the more common diets. Paleo seems to be more hit or miss. The former two were highly regarded for parents of autistic kids in this large survey. Notice that heavy metal detox--chelation--was the best rated intervention.
http://www.autism.com/index.php/treatment_ratings_asd- Re: Some Cyber Support much needed :... Cure16
9 y
2,126
This is a reply to # 2,255,214wow. that is interesting. thanks for all the info. I was trying to get metals out with a sauna. and trying to get more minerals into me before I tried chelating. I think so many of us are all riddled with metals.
- Re: Some Cyber Support much needed :... Cure16
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- Re: Some Cyber Support much needed :... joegrane
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- Re: Some Cyber Support much needed :... Cure16
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- Re: Some Cyber Support much needed :... yeshuafan
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