had this thing for 25 years was a bad girl lol
I never listen to doctors, specialists etc when they want to push them yucky drugs into me. I always ask, "Will it cure me?" They say no. It hurts and it is a big pain in the oesophegus and gut lol. I never listened when they said quit smoking. I enjoyed it, it will kill me, but so will scleroderma. I partied hard and danced that bar up a storm. I had fun doing it too, no regrets. I got tats, nose pierced, I became a rebel against sceroderma. I worked hard, travelled,settled down with one child. The child was my reason to quit my hard partying. Not the scleroderma. I prayed I would live till he was 18. I worked 3 jobs and paid off a house, just in case, well you know. Things are worse for me now, throw in very low blood pressure, salt loss, skinny, thyriod, no longer can get my oesophegus stretched. I eat best I can, gave up the smokes, my hand is clubbing, just not me anymore lol. I have great hobbies, get out, friends, and one thing I do know. I would not be here typing this now or had the life I lived if they stuck all them drugs in me. Watched friends I made who also had scleroderma do everything the doctor said, would laugh and tell me off cos I was so norty. They all lost their battle, and I miss them. Just wanted an introduction post, and say hello.