I have also been scared out of my mind that I have MS or ALS. I am 5 1/2 weeks post removal and just finished my 1st period. I havent had any tests done thanks to this website and im starting to feel better. i have good days and bad days. I still get joint and muscle pain, dizziness and twitching in my muscles. I think patience is key. I dont understand how the IUD could still cause problems after being out for so long, but I really think that is root of all our problems. I spend alot of time on this websight because it brings so much comfort to me when no one around me understands. i appreciate everyone here.