Re: My story in finding a cure! (Body Odor Forum) 6/15/2008 1195377

Re: My story in finding a cure!

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Re: My story in finding a cure!

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Hi Mark82,
Thanks for all this very valuable information. I really wish more and more sufferers would give a thorough report like yours, so that we can all learn from it.
Unfortunately, the only type of body odor fully understood by science is Trimethylaminuria (tmau), and all the management protocol published is geared toward tmau. This leaves behind all the other sufferers that have different causes of BO, and this is precisely what moved me to do the blog.
I hear you loud and clear about your pessimism regarding not only finding a cure, but actually attempting to do so. Many of us feel the same. Since the blog went live on 21 days ago, I have met 3 different scientists from various countries of the world, and I know there are more out there, who are very eager to research the other causes of BO (other than tmau) to help those who have no guidance whatsoever. The reason these 3 scientists are motivated to do so is because they themselves, or very close family members, suffer from body odor as well. In addition, government sponsored programs, like the U.S. National Institute of Health Office of Rare Diseases Undiagnosed Diseases Program, have been funded to begin research in BO for non-TMAUrs, and other possible types of genetic disorders. I know that there is also some research being conducted in the UK and possibly in Japan because I’ve read some of the articles. I do agree with you, though, that there is much too little out there in terms of funding and aggressive research.
Have you tried any particular diet or 2? If so, how have your reacted to them?
I hope others take your example and give us info about what they’ve tried and what effects they’ve had – positive or negative. A few scientists I refer to are compiling a full survey/questionnaire for research that will soon be used in the blog. I hope all the sufferers participate in it, since the data we give them will serve to assist them in finding a cure, or at least a management protocol.
Thanks for sharing,

Maria

All of my messges on this board All of my messges anywhere

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