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Re: MS and you as my best friend
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Published: 13 years ago
This is a reply to # 1,218,183

Re: MS and you as my best friend


I am Luella and Tony's friend Donna. I was diagnosed with muscular dystrophy in 2001. I know from firsthand experience what it's like to live with a neuromuscular disease. I know pretty intimately the path you walk on. I hope we can become friends.

I'm going to ask you a few questions to get to know you better. I'd like to know your gender, your age, when onset occurred, and what kind of MS you have. Are you on medications now and under a doctor's care there in Jordan? Are you a native Jordanian or a guest living in Jordan? How easy is it for you to get to Amman? What kind of an herbalist did you see? Has this person had success with helping people with MS? How fast is the MS progressing? What can you do... meaning, how is the MS challenging you? Do you use a cane or are you in a chair already? How advanced is it? Are you able to do any kind of exercise or walking? Are you suffering in pain? Numbness? How badly does heat affect you? How easy is it for you to get fresh fruits and vegetables? Do you have a water distiller or could you get one? Do you have a juicer or even a blender, or could you get one? What do you do for a living? Is the MS affecting your ability to work/bring in an income?

Now, I know of a girl who healed herself from relapsing and remitting MS. This woman has been an amazing inspiration in my own personal quest. Her name is Gina Kopera. Google her.

Let me tell you something I've learned that may save your life, Mo123. You need to assume, today, a positive attitude. I've noticed this in my own life. You're going to meet all kinds of people who will tell you, "Oh, you poor thing. MS is a death sentence. You're going to be a cripple and live your life in a wheelchair." You have to make a decision about whether you are going to believe this or not. The medical community told me more or less the same thing. I said, "Or not!" It's been seven years since the diagnosis and I don't even have a wheelchair. It can be so overwhelming. Your entire life can revolve around the disease, if you let it. Nobody, and I mean nobody, understands what it's like to have something like this except for those of us who do. You're going to meet people who would just as soon plan your funeral and be done with it, and you're going to meet people (like me) who will tell you there is no such thing as an incurable disease. I have been shocked to find out that some of the people who are the closest to me are the ones who have the least hope in/for me. But at the same time, I have many others who love me like there's no tomorrow and are my biggest cheerleaders. You need to hang out with the positive folks. They will be your life line. I have met the most incredible people (like Luella and Tony) since I started on my healing path. I NEVER would have met them if I had not been diagnosed with this.

I will be very up front and serious with you. You're at the bottom of the Grand Canyon and you've got to get to the top. There is only one way to climb out of it and that is one baby step at a time. I can tell you right now you have it within you to do the work. I think you are amazing for not giving up and giving in to it. Go ahead and embrace what is lying ahead for you.

But I'll tell you something else I've learned through being diagnosed with dystrophy. That is, God/YWEH gives us things like crazy diseases for a reason. You know what I've really learned how to do... or am in the process of learning? How to live... I mean really LIVE... like, doing funny, goofy things with my teenagers and taking time out to watch the sunset God gave me for this very day and no other or to goo-goo at a baby and just enjoy life. You know, smile and laugh a lot. The other thing is to love. People are STARVED for love. People are also hung up about saying "I love you," like loving someone is a sin, when, if you think about it, it's the most godly thing you can do. You tell people "thank you" and "I appreciate you," and "I'm so glad God put you in my life."

Muscular dystrophy isn't the end of my life. In a way, it was the beginning. I can't run, Mo123, and I do hope someday I will be able to. But I can love people. What's more important?

Sweetie, I wish there WAS a magic pill ot a magic wand to cure MS... and MD. There's not. It's going to be a long haul and it's easy to get discouraged and even depressed. Been there, done that. From the people I've met sitting in the neurologist's waiting room who have MS, I think there really IS something to the alkaline (80/20) diet you wrote about, and going gluten free. I've heard some respond well to colloidal silver, and I definitely think you should give silver a shot, and colloidal gold, too. You've got to make the decision yourself about whether you want to work with a medical doctor who welcomes complementary/alternative healing modalities, or if you want to try to find a naturopathic doctor there in Jordan, or even in another country if you feel comfortable traveling.

As for best friends, you're not going to find a better one than Luella May. I know.

I'm going to start praying for you.


Donna in Waco, Texas

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