I just remembered how I found the Society for Participatory Medicine White Paper. I saw the term, "e-patient" somewhere on the net and I Googled it. It took me to the Society for Participatory Medicine.
I agree, I don't consider myself a patient. I consider myself a "consumer of medical information." I don't like the term, "patient" because it places me in a hierarchical relationship with a "doctor," the presumed expert.
Information is the great equalizer, thus the hierarchy collapses.
Okay. But don't stop reading the article because of the e-patient thing. As you read on you will find most of these these people are in fact, discriminating, passionate, researchers and analyzers of medicine. They see themselves as researchers unintimidated by authority.
I want to join one of these groups and lobby to change the "patient" designation that has to go.
Got any suggestions?