I hardly ever get on here anymore but Im glad I did. How long has it been since you had mirena? Do your symptoms come and go? It literally took me alittle over 2 years to be free from symptoms and even now, 3 years later I get slight symptoms in my left leg. I know how horrible it is to think you have an aweful disease that could kill you. I lived that way for over 2 years. I hope you can find some peace at this time.