Thanks for all the insight. I have an appointment at a tropical clinic soon so hopefully it will be taken more seriously there. If not then I will definitely look into the self treatment options. Second blood test results in just under a fortnight - not sure how reliable they will be!
The swelling last year started from my belly button downwards but has now moved as high as my sternum which seems fairly serious to me. Nevetheless, I've been encouraged to 'exercise it away', or that I'm, 'not getting better because I think I can't'. It's relief to hear I'm not alone in thinking the guy has got it wrong!
Good luck to everyone dealing with these parasites - I feel your pain.