Towards the bottom of that page are three research papers which deal with LVHT or related cardimyopathies. They should all be studied.
If you need to pursue this I would advise discussing LVHT with a pediatric cardiologists as well as conventional cardiologists. In Australia, at least, most cardiologists do not get much exposure to this condition and may not be well informed about treatment. Pediatric cardilogists can have a wider spectrum of exposure to different heart aliments and may be better versed in possible treatments. Certainly our experience.