Hey China, glad you are doing better and have the proper specialist treating you. In a weird way you are lucky, too bad you have to go through all this to finally get help though.
You know, about 2 years ago, way bay before the knowledge of my infestation was known to me, I saw an eppisode of that show monsters inside of me. (lots of BS on the show, but this one I remember well). The subject was a man who was from a small villiage in India or Nigeria or somewhere like that. Anyway, the man now lived in the US and I believe he was a physician now. He had Arthritis or something and they gave him many rounds of steroids. He went from having a minor issue, to suddenly became worse and almost dying. It then came out that he had some type of worm infection, his immune system kept it sealed all these years since his childhood, and the steriods let it fluorish like mad. They explained how steroids suppress the immune system to allow hidden disease and parasites out. I'm sure this info came from medical science, and not the imagination of the producers of the show.
My point is that if it is known in medicine that steriods can release more hidden worms, it really makes you wonder why the smart doctors would give them to someone who is at high risk for infection like you were. How is it that we know more than them about these things, how they work, how to treat them, etc??
It's too bad that you had to go through all that just to prove to them that they are mistaken about something that is their field of study, just the get right amount of medication. The sad thing is, they will turn around make the same mistakes over and over with the next person.