That's awesome! Yes please keep us posted, Just (if you're allowed) try to not let them rip of the skin, but they will MOST LIKELY want to do a biopsy at least on the crusts. But yeah tell them about creams because they don't work...but welcome any other treatment they may find beneficial.
Keep us posted! If you would like to show them this site and mine so they can do a little more reading about it that'd be cool so they can see all of the people really dealing with this condition.