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Re: I Beat Systemic Scleroderma and am well
 
somewhatdefective Views: 8,587
Published: 8 years ago
 
This is a reply to # 1,801,392

Re: I Beat Systemic Scleroderma and am well


I know this is an old post, but I felt like I needed to respond here.

I know that it can be highly frustrating dealing with an autoimmune disease like scleroderma, as modern medicine doesn't have a fix or cure for it (yet). However, while I totally appreciate your experience for what it is, it's a little irresponsible to come touting a cure for scleroderma through a change of diet, or saying that prescription drugs are dangerous and shouldn't be used.

Ultimately, medicine is Science and is based on replicable data through studies. No one person's experience or anecdote should steer you to a new course of treatment, or even worse to avoid conventional treatment or a doctor. I'm especially concerned about people "selling" such cures on the Internet. And drinking borax, why?

Let's be honest: there is no evidence that supports that scleroderma is caused, or even made worse by, things like fluoride in your water, by eating processed foods, or by eating grains. If you want to try eliminating processed foods, more power to you, but *please* do not take the place of talking to a medical professional about your issue.

I'm especially confused why this user was on a course of Antibiotics (!) for a year (!!) when scleroderma is not caused by any kind of infection. I've read a lot about systemic scleroderma and there's nothing that indicates that Antibiotics are supposed to help, so I'm not sure if the original poster is mentioning the right treatment or maybe perhaps not the right disease?

For clarity, I did try a lot of dietary changes before I got my diagnosis as I didn't know what was wrong. I did go totally no-grain (gluten free, actually), eliminating processed foods, etc. (as I have a family history of celiac disorder and was waiting on getting checked). It didn't cure me -- it didn't really do anything at all. Now that I'm on a course of treatment -- I have polymyositis too, and I'm on steroids and immunosuppressants -- I do find that generally healthy eating is a good idea and does make me feel better than eating junk, but it's in no way a cure-all or a replacement for responsible medical treatment.

Please, if you have scleroderma, you should be working with your rheumetologist on a course of treatment, not looking on the internet for phony cures. Be careful.

---
Roz
My blog http://www.somewhatdefective.com
 

 
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