Sorry for not logging on this forum as I was tied up with sth in previous months. From the beginning of this year I started to use Vaseline to keep my lips moisturized. I applied twice daily, one in the morning, and one before bed. It seems to be manageable for the time being. Of course, I am still very keen to find a cure, but before that, I think, not thinking it too much is good for myself.
But I agree with you that everyone should share more if you have time and chance to log on to this forum. We can only help ourselves.