I apologize to hear what you are enduring. I hope it is not a parasite, for your sake! However, if it is, you are not alone. I have more than eight moving around and it is disgusting.
I wish there was a place we could all go for help, inpatient, but unfortunately that's not the case. I had hopes of being locally admitted but the Infectious Disease doctor said it's just neurons firing. Ummm, no. I even have diagnosis of ascaris. The medical treatment is abhorrent!
I spoke to a Doctor from Yale today, he currently is an allergist to my children. Even he understood parasitic dissemination! Sadly, he did not comprehend transmission very well. Much to my children's demise. Saliva is a transmissable route once disseminated (drinking after ea other). Period.
Between chronic C.Diff and immunosuppression with ascaris, I'm not doing well. Nobody should have to go through this. Nobody. I am sorry you are dealing with the USA taboo word worms. :(. We believe you here. It's not psychosis. You know your body best!
I really hope a treatment helps you rid that worm!