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Re: New to Morgellons. Seeking emotional support and practical advice
stephaniefromgnv Views: 760
Published: 7 years ago
This is a reply to # 2,346,502

Re: New to Morgellons. Seeking emotional support and practical advice


My heart goes out to you! The toughest part must not having a partner who (yet!) is on your side.

It's not a death sentence, but I found for myself a radical change in lifestyle habits, mostly eating, was necessary. I had Morgellons for 10 years without knowing it. I had a crust about 1/4" thick on my scalp, private parts, inside my ears, nose, etc., combined of Morgellons particles, parasites, the weird plastic 'skin' that often forms on top of the particles, you name it. I was devastated when I first found out. It's a long story.

There is a forum called, or something like that. There is a lot of good info there on dietary lifestyle. The most important thing is to get rid of ALL Sugar and to get tested for gluten allergies. That includes milk sugar.

The man who owns the site, I think he may be getting a kickback from the vitamin companies he recommends, because I once posted an alternative protocol I am using, and it never made it to the website. In any case, it's not necessary to take all those enzymes or vitamins he, or anyone else, recommends. Enzymes actually can make your own body lazy about make enzymes. I have over 15 years in the vitamin industry-I know what I am talking about. You'll find out for yourself what works for you and what doesn't and inexpensive companies to order stuff from. I can help here. Some vitimins are very important, and I'll talk about them in another post.

The reason for getting off all sugar, and reducing carbs, is that these parasites, whatever is inside and out, feed off of sugar. They LOVE it. If you cut out Sugar and wheat or anything with gluten, you are starving them. Most Americans are gluten intolerant too. There is a simple test for food allergies called the pulse test and it's actually more accurate than the allergy tests taken at the doctor's; they don't recommend it because it's free. More on that later, also.

In addition, fatty acids are incredibly important. organic lax oil (I use Barlean's flax oil), other Omega 3's (like salmon, which I don't use), saturated fats like organic coconut oil, start using them on a daily basis. Get rid of the margarine if you have it, it's frightfully unhealthy. There is a great book out there written by a doctor, 'Eat Fat Now.' You can get it on Read it and take the amounts she recommends also with a grain of salt; find out what works for you.

The biggest mistake foisted on the American peoples was the low fat diet. In fact, it was a single man's study that started it-I forgot his name. We are an incredibly ill and obese nation because of it. It's the opposite, high fat, almost no carb diet, that one needs!

Once again, I know what I'm talking about.

And critically important is to look up 'iodine deficiency, parasites' Iodine crises, and find out if you are Iodine deficient. There are simple tests for it you can find on the web. One is the skin patch test, it's not terribly efficient but it worked for me. We are a nation that is starved for trace minerals, they are simply not put into our soil. Iodine is one of them. I did not know about this when I was in the vitamin industry and I wish I had, it would have changed my life 180%. It is also important to chelate the body of the heavy metals that are being dumped on us by chemtrails, and iodine can do some of that. If you don't know what chemtrails are you can go to a website called and find out about it.

There are co-factors you take with it. I put it on my sores and take it internally.

I was taking Lugol's iodine, up to 300mg (that is not a typo)a day for my Morgellons, and now I am getting indications that I need less.

There are lots of different baths you can take too. I bathe in salt. Many people bathe in Epsom Salt but it didn't work for me.


Regarding your husband, you might want to buy a cheap digital microscope, attach it to your computer, and take pictures of the stuff that's coming out, then show it to your husband, in a very nice tone of voice, "Honey, what do you think this is...?"

I think that people are very frightened, on an unconscious level, of things like this and react in scorn and ridicule as a defense. I have two highly intelligent friends with wonderful critical thinking abilities - one is a physics teacher - who absolutely derided and scorned me when I told them about this. I then showed one, the physics teacher, the the pictures that I took of some specimens with my microscope (Plugable Digital Microscope)and although his derision didn't stop, and I could see he was now taking it in somewhat. It was penetrating him on some level, I could see that.

You are very lucky you found out about this now, because as the syndrome progressed it would have potentially morphed into something much worse. I am a CNA now, and many of my patients have this. I do not tell them, because they have more important things on their plate, like dementia, or Parkinson's, or dementia AND Parkinson's, but they do have it. I recognize the symptoms on them.

More later on this.

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