Well i guess im the only one who is thinking about surgery. But what is your plan? Im not quite sure if this condition affects you in the same way as it does in my case, but it ruins my entire life. And even if there is a way to cure it i wont find it.
So i dont know how you guys want to continue? Just to accept the fact that you will never be able to live a normal life again, isolate yourself completely and live on your own?