It may sound "stupid" and you may think "it's not going to change anything", but you may want to consider getting some professional psychological help.
I have had this for almost five years now. I was already married when I got this, so I guess that's a plus, but it hit me very hard back then (and still does). I had suicidal thoughts regularly, especially during the time when I did the "leave them completely alone treatment", which was about half a year back in 2012.
Since then I got psychotherapy, and I have continued on with a somewhat different life (less social activities) and since then I have even become a two time father.
I have to add that for the past 1.5 years, my condition got a LOT better, which I don't know the reason for. About two months ago EC hit again, my condition has gotten a lot worse, basically out of the blue. It's again affecting me dramatically psychologically, but I try to have a positive outlook, as hard as it is.
Surgery of the lips would actually be the last thing I would ever consider. I don't think it would help, and the chance of it making things even worse is probably quite high.
Sorry for the long post. Not sure if it is of any help. Just wanted to let you know that I think getting some psychological help is a very good idea with this condition.