I really dont know what to say. 20 years with this shit, i could not handle this. I would rather kill my self seriously. It breaks my heart to see people suffering for all these years.
People without EC cannot relate of how hard it is to live with this condition.
The issue is that with every test that doesnt give you the answer your hope gets smaller. It just my personal opinion but i think the truth is that besides a specific kind of this condition EC can not be cured.