Jazz, I don't know what doctors you have seen, but there is a wonderful neuro-opthamalogist in Dallas named Dr. John McHenry who definitely thinks outside the box, and you might consider seeing him. I would recommend him.
I'm improving and only have a day of anti-parasitics left (at least I hope), and about 4 or 5 weeks of anti-fungals, and I should do 13 mos. doxy for Lyme. Just a little weird stuff left. BTW, I am a jazzy gal.