Mike, thank you for sharing. I really appreciate that.
You wrote "I think in almost all cases, since people with EC are missing a layer of skin, the condition is perpetuated by either bacteria, fungus or allergens getting in so the skin can never heal over. Maybe it senses it is under attack and keeps rebuilding protective layers. This helped my lip skin heal over again... and maybe it will help yours" -- This is interesting. I considered this but never gave it much thought before.