Ok, I have righteously bad Long Covid and cannot find decent information on it.
I need to get better, and my insurance covered providers have no idea. I cannot afford to be this ill - I cannot even get to the grocery store.
I know I'm not the only one. We need to host a good section on this. Please?
I have identified that word has it people who got GI COVID (not just lung COVID) are more likely to have Long COVID. I am one.
I have heard theories that
1. the virus might still be alive in the GI
2. "viral fragments" or "debris" are ticking off the immune system
3. the immune system went into self destruct (?)
and am watching, again, the new information from the latest study by Dr. Bruce Patterson
Question: what the hell is actually going on in the human body with "Long Covid"?
It's unlike anything I've ever seen. If I have to walk for half an hour to / from a medical appointment, I'm "back to square one" bed-ridden, GI problems, neurological problems, - toast. WTF? ...for days.
I have no idea how to treat this. It seems impossible to recover from on it its own.
I have no idea how to treat this. I have no idea what's wrong, clearly the mildest exertion makes us heinously sicker.
I am on month _7_
Thank you for your help. I hope we can get a good, helpful discussion going. Clearly there are millions being underserved with this illness.
p.s. questions re: dr. bruce patterson's study 1. if the S1 blood issue is the underlying problem, why do
1. only some people with COVID develop long COVID,
2. how is the human body getting rid of the COVID in the others, and
3. how to recover without access to the expensive / rare drugs he is recommending.
4. and what is the GI connection?
A lot of this doesn't make sense. But, frankly - I just need to get better.