The problem driving me mad. I think we should all band together and set up a support site. I love curezone but the way the messageboard is set up is annoying and messages get lost, no one f**king replies. We need stickies for people who are doing these studies like you Critter. We need to get all our data from our derms / doctors from around the world and put them together. there will be one derm out there who has a clue. I have set up a forum and its dead propbably becuase i havnt advertised and there is no actual site but if have supporters i am willing to set it up but i cant do this on my own i need mods and people who will dedicate there time to the forum.
This is a complexed disease and people have moaned that derms dont have a f**k whats going on. The reason is they think its isolated cases and not worth the time/ money and effort to research this. We need to band together so we got a place to show doctors that this is serious problem that there are loads of people suffering from. Some derms dont even igknowledge its a problem. It may not be life threating but its serious, the mental effects are horrible.