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Published: 18 years ago

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Hey everyone, this will be my last post for the time being but i know i mentioned previously that i was thinking about getting it surgically removed because it is the only thing that seems logical by now, after several years of suffering.  I have tried everything from protopic, to fucidin, to prevex, to efudex, to lip shaves, to laser surgery and nothing works.  Nothing is permanent, although fucidin seems to help relieve the symptoms for the day which means id have to apply every evening which is not how i want to live my life. I also used efudex and it helped but did not cure 100%.  It made my life more enjoyable by curing several small areas that peeled but only reduced the thickness of the other areas, in other words, it peels at a slower rate and is more thin when peeling, easier to rub off or remove.  All in all, efudex probably cured about 40% in total.  It also made the entire lips look real without discolor and the creases in the lips are back.  Even when peeling the creases are there which makes it look more normal (proof that that the thicker areas are now thin).  I recently saw my derm and he was happy to see the improvement and even said they look like lips again, more smooth and 'lucious' you can say.  Still, they have their problems.


Realistically, there is no cure, if there was we'd all know about it and be free from our symptoms.  Today I saw my family doctor (also my next door neighbour) and he told me that he has only seen one other case that was similar and the person was also of the same age (early twenties).  He said he refered him to a specialist in plastic surgery and the person is now fine because he had the area surgically removed.  Well, this confirms my theory that this is the only way to go about this problem.  It is a skin disease and picture it like cancer, you have to surgically remove it to rid of the problem.  It is the same with us.  So he made me a referal and until then I suggest you all look into it also. I will post with a reply after my appointment which will probably be in a few months.  Good Luck To All.




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