I also need help as I have a friend with Crohn's. The best advice I could give him was to find a QXCI-SCIO user in his area and get a full body scan. This machine can scan your body and tell you exactly which bacteria and viruses in your intestines and colon are causing the problem. It can also bring up whether you are toxic with heavy metals or other substances that weaken your intestines and allow the bacteria to thrive there. So removing all toxic material, colon cleansing, liver flushing, vegetable juicing etc are all important. As is parasite cleansing. All this information is on this webstie, under Hulda Clark 's section.
But the QXCI should be able to identify the true cause of the problem and then they can go to work and concentrate on the root cause. Instead of taking broad band Antibiotics to kill everything when it could be a mixture of a parasite, bacteria, toxin, mineral/amino acid/vitamin deficiency or even yeast problem. Or even something the doctors haven't thought of yet! That is why everyone responds to different treatment. You mentioned taking Primal Defense which kills yeast and is primarily an Anti-Candida drug. I have read many people on the Anti- Candida Forum say that Three Lac is even better for killing off the yeast. But I think yeast is only part of the problem. Many people have Candida but don't have Crohn's. While doing all of this the immune system needs to be addressed. Why is it acting out of sync with the body? There is a great drug Tranfer Factor that boosts the immune system but ask your doctor first before taking it because you don't want to boost an immune system that is currently attacking it's own body -(auto immune disease). I would be interested to know what he says. You can look up Transfer Factor on the internet.
I don't know where you live but if you can travel to a Naturopath or any Alternative Practitioner with a QXCI machine it may be worth while. I have not personally used one of these machines but it's definitley worth a try when your son is so young and the doctors are talking about him being on medication for a long time. If it helps great, if it doesn't at least you know you have tried every possible route, before the doctors start talking about surgery which may happen in the very long term future.
Keep on posting as to how you get on. If my friend goes to the QXCI practitioner I will let you know what happens.
If you read Hulda Clark 's book " The Cure For All Diseases " $21.95 at amazon.com she has cured a few people of Crohn's. She also has a clinic in Tijuana Mexico and only charges about $50 for an appointment but don't quote me on that. That is if you haven't read the book already :)
It all takes time, but I am sure this problem can be solved. Vegetables vegetables vegetables!