Re: Hi

I'm sorry to say that as of right now there is no cure for what we have. We have had people from Europe, North America, Asia on this forum all looking for a cure, but to no avail. I would recomend you do your best to maintain them and then move on with life. Lots of people will say they are going to maintain them until they find a definite cure, many of us act like a cure does exist yet all the doctors, dermatologists, and patients worldwide are un-able to find it.

I truly believe that constantly looking for cures, and worrying about how bad your lips look, and whishing every day about the convience of a normal pair of lips (i know, i have a few years under the belt with this porblem as well) makes everything worse. Mentally especially.

Many of us believe that our group is the first of its kind, and that this problem hasn't been studied before, but i has. It has been studied and nothing has changed, all the dermatologists have at this point is a lable for the problem we experience... "Exfoliative Cheilitis." Thats as far as they've come but people don't want to believe this.

The only thing i can recommend to you is to find a decent moisturizer (i use wheatgrass cream). Try to lightly exfoliate the skin with a warm wet towel,it helps even more if you can run your lips under water. Then after apply the moisturizer. And try not to worry about it too much. This forum compared to others is somewhat unhealthy, everyone runs in circles every day trying to find a cure and they don't. I have been to many other forums with people who have accepted their problem, and have decided to live with it. Try to find forums like these, the people in those forums who believe there i no cure can helpd you much more then the people who do.

Goodluck.... oh and no matter what anyone tells you DO NOT lick your lips, it will make them feel much more raw and bare and altogether worse. But then also don't let them dry out too much as well. And don't avoid touching your lips to foods and drinks in hopes of keeping them dry enough for the skin to stay on. All these things are looked at as good by some but i've tried them and it makes it worse. Tweet