Date:   4/12/2005 12:54:04 PM ( 18 years ago ago)
Hits:   4,151
URL:   https://www.curezone.com/forums/fm.asp?i=376051

The problem driving me mad. I think we should all band together and set up a support site. I love curezone but the way the messageboard is set up is annoying and messages get lost, no one f**king replies. We need stickies for people who are doing these studies like you Critter. We need to get all our data from our derms / doctors from around the world and put them together. there will be one derm out there who has a clue. I have set up a forum and its dead propbably becuase i havnt advertised and there is no actual site but if have supporters i am willing to set it up but i cant do this on my own i need mods and people who will dedicate there time to the forum.

This is a complexed disease and people have moaned that derms dont have a f**k whats going on. The reason is they think its isolated cases and not worth the time/ money and effort to research this. We need to band together so we got a place to show doctors that this is serious problem that there are loads of people suffering from. Some derms dont even igknowledge its a problem. It may not be life threating but its serious, the mental effects are horrible.

Anyone want to help?

http://excheilitis.proboards30.com



 

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