Dont worry its not like its as bad for 2 years......from memory the pelvic pain got less frequent and was gone completely by 5-6months. The other symptoms just seemed to be associated with certain parts of my cycle and not as severe (so much better than the entire month long).....I wont say its been easy but you just have to keep reminding yourself of the improvements you have made along the way. did they give a reference range for hormones?
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just wondering if they checked you estogen and progesterone levels? I had pretty similar symptoms (& more) and things started to improve once my cycle started (but I did need some extra help (see previous posts by clicking my name), basically a little oestrogen & vitamins......I am now almost 2 years post and I think pretty much back to normal but it was a gradual thing.....unfortunately not instant. Good luck. My only advice is to get you hormones blood tested, & I have been taking magnesium, vit B, fish oil & recently Vit D (all with a green fruit & veg smoothy).....I think the Vit D ...
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I hope you are feeling better soon, I am afraid it can take a while to get your body rebalanced after removal but at least you are now on th right track.
Thebrokenrecordmachine, I remember you were seeing your endo for tests, Would you mind telling us how you went and whether they gave you any advice? It’s always good to hear what others have been advised. [End]
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Hi Kelly,
Just wanted to say hang in there, remember how far you have come. I will be 2 years post this coming february and still have mood changes through the month....it is frustrating but no where near as bad as it was during the first year (I have faith that the improvement will continue). I do believe it does take us time to recover. Our bodies have been through so much and it seems logical that it will take time to get things back in equilibrium. I have suspicions that it is something to do with the way our bodies recognise & use the hormones and this takes time to resensitize ( ...
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Have you had your hormones tested late in the cycle (day 21 by blood test) as these would tell you definitely whether you are ovulating. It may cost a bit more but at least you would definitely know one way or the other. [End]
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Sorry for my late reply, I think you need to send this to Pocket Lady. I didnt have success with casteberry as my problem was low estrogen and it can make that worse. [End]
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I have just been doing some research......I know too much google is a bad thing but I though I would post the link as I thought it may give some answers to why it takes people a while to recover even once their hormone levels come back normal.
This search came from a discussion with my Gyno who told me that the mirena does suppress your normal hormone production. Now I know this link is more about menopause and hormone replacement but I figure the info is still relevant whether your hormone levels drop naturally or though a drug like the mirena.
It discusses the effect on estrogen r ...
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Hang in there. I really didn’t find much improvement for the first 5 months....I remember thinking but others are so much better now what is wrong with me. I remember that somethings started to lift around 8 months in that the horror PMS (which I had NEVER had before mirena left).....I have no idea why but for some reason it went although I would still have a down day or so a week before my period was due (which still occurs to varying degrees and for no reason I can think of as I dont even think there is a hormonal dip there. The same happens about 3 weeks before my period is due....a ...
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I am sure you are not going crazy but it is really hard to not freak out when you dont have a reason isnt it? I think there are lots of other things that impact our depression/anxiety like blood sugar and thyroid hormones.
Remain strong the answer will be there. Also remember that most people here are recovering even if it takes time so hang in there. [End]
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Hi,
I am afraid I don’t know much about the blood test results but did you get a normal range for the oestrogen/progesterone? [End]
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I was looking online and I found this info on Mirena
Levonorgestrel is a progestogen. The contraceptive and therapeutic effects of Mirena are mainly based on local progestogenic effects in the uterine cavity. Levonorgestrel has an antiproliferative effect on the endometrium and it inhibits the endometrial synthesis of estrogen receptors, making the endometrium insensitive to the circulating estradiol. Morphological changes of the endometrium and a weak local foreign body reaction are observed during use of Mirena.
So my question is that if it ”inhibits the endometrial synthesis of e ...
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Sorry nothing was found in the blood tests. I have wondered in the past whether the problem may be the mirena hormone turning off the receptor cells not just affecting the hormone levels, I am sure I have read something about that in the academic articles, so maybe that is why the body cant react normally to normal hormone levels? [End]
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Thats good you have another blood test planned. Make sure you know when in your cycle it is eg if your cycle is 28days it is meant to be on day 21 (I also had one done on day 3). If you dont know what day it is in your cycle you wont be able to compare to the reference ranges correctly (there are normally different ranges for the three sections of your cycle).
All your symptoms really sound like estrogen deficiency (if you look them up).
Good luck for the blood test I really hope you get some answers. [End]
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I have no experience with progesterone but I know that taking vitex which is meant to increase progesterone made me worse......so I guess just be ready for it to make things worse.
Is the progesterone meant to make you ovulate better or something? It seems hard to understand how taking something at the part of your cycle where you feel ok anyway will improve the part of your cycle when you arnt feeling great.....
Let us know if it works. Is the progesterone in a different form to the mirena progesterone? there is no way I would touch that stuff again.
I take it your estrogen le ...
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Sorry I should have said that I am no dr and would feel bad if someone out there really needed to take some drugs to take the edge off and felt it was wrong. I think we all need different things to get us through it was just not the right thing in my situation. [End]
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I am lucky that no dr ever suggested antidepressants....one actually told me it would not be a good idea as it masks what is wrong so its hard to then fix it which made perfect sense. And why would someone need antidepressants for what is clearly a hormone imbalance???
I think they are reluctant to prescribe estrogen without progesterone as it gets such a bad wrap cancer wise but in my dr’s words ”i dont do well on synthetic progesterone” and I am ovulating but not well ie am releasing some progesterone but not anywhere near my pre mirena levels (but hopefuly enough to offset the small ...
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All I can say is that you are not alone and really I could have written your post as my experience was pretty much identical although I also had extreme vertigo constantly before removal and at times after removal (and major blood sugar swings). The anxiety and depression were my worst symptoms also as I had never ever had these before and like you the depression would hit that day or two when I would expect my period but it never came. Then after removal I would feel so flat from day 4 - 14 (just like you... amazing coincidence).
I had my mirena removed feb last year and over time hav ...
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I found that my anxiety and my very long periods (up to 3 weeks) were due to low estrogen levels......on low level estrogen my period has dropped from 12days to 5 days and I am feeling much better and have a LOT more energy.
Might not be your issue but worth a thought. [End]
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It certainly does seem hormonal....isnt it frustrating knowing that its all coming month after month....I will say that even without the hormones I did notice a big improvement from about 3 - 6 months in terms of the strength of symptoms, also I was getting bad PMS after the removal for the first 6 months or so then it pretty much disappeared overnight. I know it must be so hard doubting your relationship but take heart that it all improves in the second 2 weeks and therefore underling everything you are still in a good relationship and sound like you have a fantastic understanding partn ...
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Hi KellyC180,
I can relate totally to your situation.....never any issues with anxiety/depression prior to Marina.....any way I have had the marina out for just over a year now and am glad to say I am much better. Like you I have felt better in the second half of my cycle (not sure you are the same but I feel at my lowest during and towards the end of my Period (although some month there were other times also) I also thought through internet research that I was estrogen dominant......so I was surprised to find I am oestrogen deficient! (progesterone isnt great either but it was the estr ...
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I too have had trouble with hypoglycaemia.....you can read my past posts for more details (click on my name beside the post). In terms of tests I would get the endo to run, the general blood sugar, insulin, c peptide etc, the thyroid and adrenal panel, and a hormone panel (estrogen, progesterone etc (make sure you do it at the right time of the month ie about a week before your period....so if you are only 3 weeks out you may have to wait for this one).
My hypoglycaemia seems to be improving (i am almost 1 year post removal).....now however my blood sugars sometimes go up to just over ...
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Thanks for your story. I had to reply as it read identical to my own story right down to the hypoglycemia, left hip pain, faintness and anxiety.
Can I ask did you have your hormone levels checked?
I currently feel like I am currently at a loose end as I went to the endo due to my low blood sugar (identified about 6months post removal) and his only answer (not having done any scans etc) was that maybe it was just me and we wouldnt worry about it unless it was regularly at 2.5mmol. He then retested my hormones (as my estrogen levels continue to be very low did a MRI of my pituitary ...
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While having a blood test for other issues I returned a random blood glucose of 3mmol/l, as this corresponded to some other issue I have had with anxiety, dizziness starving hunger etc I was given a blood glucose monitor to use before driving while they work out what is going on. Now my question is, when I feel OK but a little hungry my monitor says 3.9 but when I feel terrible, starving, dizzy not with it and burring up the monitor says somewhere in the 5mmol/L?
I dont know if this is just normal and it means there is no problem with my blood sugar or not.
Any Advice?
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I hope you are feeling a little better now.....but dont worry it does take time. I was taking the turmeric a full month before I felt much better. I expect it takes a while for inflamation in the area affected by the mirena to calm down, but at least in my case it really did, I hope it does for you too. [End]
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Just wondering if anyone can help me.....one of my many symptoms while I had the Mirena was extreme frequent hunger. Unfortunately I never had my blood sugar tested at the time.
Now 6 months after removal while I was having my hormones tested they also looked at my blood sugar (which came back hypoglycaemic only 1.5 hours after eating breakfast). They sent me for another blood test (so this time I ate a massive breakfast of banana, apple, burcher muesli, yogurt) 1.45hours later had a blood test, this time my blood sugar scraped into the normal range but my insulin and c-peptide were w ...
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Just letting you know you are not alone and that my symptoms started about a year after getting it....just after I weaned my son and coincided with the return of my cycle. I have had it out for 6 months now and although not 100% I am about 80% there and continuing to improve (I hope).
I would definitely say get it out and let your body rebalance.
Best of luck and I hope you dont feel alone, hopeless or crazy (I certainly did for a while), you will improve!
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Its an indian cooking spice (very yellow in colour). I bought mine from an indian grocer as you can get large bags pretty cheap but I think even a supermarket would have it. Alternatively I have heard that you can buy the active ingredient (curcumin) as a vitamin but I think you have to make sure it comes with pepperine as its the pepper that makes the curcumin bioavailable......I just found it easy to add about a small teaspoon of the powder to a cup, a bit of ground pepper a shake on cinnamon and some honey (to hide the taste) in a cup and add some hot water to dissolve, a little milk ...
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Yes it does sound like your hormones are off. Maybe check the results yourself (assuming you havnt already done so). I hope things get back on track soon.
I was told by the dr when I had my blood tests that my hormones were fine, then I went back three months later and were told they were right at the bottom of the normal range (from the same test results) and which could be low for me (why did they fail to see this at the initial reading???).
Not sure its helps everyone but I started drinking turmeric tea (turmeric, black pepper, cinnamon, honey dissolved in hot water with a little ...
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Sounds like you have been doing it really tough. I hope you panic attacks pass soon. Just wondering if you have had your hormone levels tested? Could they be too high or too low leading to your symptoms? Just a thought.
Take care. Wishing you a speedy recovery. [End]
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THanks everyone for you input, I think I will see a naturopath (I have never been to one before) to see if they can help. I have only just turned 36 so I think my own body should be able to do something about this. I have been off the Mirena since the 11th Feb (will never forget that date!), but since then I have had long periods and spotting until ovulation. Although annoying I can put up with that. It is really the mental effects which bother me as I am studying a PhD and cant afford to be feeling down, dizzy and not able to read/write adequately for 10 days a month. I am a very sli ...
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Thanks i take your point. Any ideas of an alternative way to raise levels?
ps i am in Australia so i am not sure if options vary from country to country. [End]
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PS I should have said if you have any experience of how to raise estrogen levels naturally or restore balance I would appreciate it. I was planning to try vitex but realised it would probably lower levels instead of raising them. [End]
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I have just returned from another dr visit as i am still have spotting 1st half of my cycle. He had the results of a 7dpo blood test back in May where my estrogen was 220. He basically said although my progesterone was good at 34 my estrogen only just scraped in. He suggested taking a very low dose of Premarin for a couple of months to help with spotting and the low/ foggy, dizzy feelings I have for first 10 days of the month in the hope it kick starts my body again.
Has any one else tried this? I am reluctant to take another drug after horrific Mirena side effects but he says this ...
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Hi Melanderso,
I am shocked as this is exactly what happened to me, fine until weaning at 18months which led to return of periods and start of symptoms, first insomnia, bloating, then really sore breasts/nipples (still a few days of after ovulation but at keast not 2 weeks worth like with mirena), then major anxiety (still some residual 5months on), plus feeling like my body was was on high alert (normally I get a lot of allergy symptoms but it dropped to nil and it just felt wrong (didnt get better till 1 month after removal when I started magnesium), depression (mostly just flat a lot b ...
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Just wondering If you have an update on how you are doing? I like your ideas they make a lot of sense. I too have been looking for a reason and solution so it would be great to hear if things have worked out. [End]
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Thanks very much for your reply. It is good to know eventually things should even out. It seems like every month is different for me. I use one of those mini microscopes to see estrogen surges and this month it always shows ferning (indicating higher estrogen) and other months it comes and goes (or shows nothing) so I am finding it quite frustrating.
Can I ask how long you took to regulate and also if there was anything (other than time) which helped? [End]
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That is very encouraging that you both are feeling better. Great Messages.
EskaArabian can I ask were you feeling better after you had the Mirena removed or not until you became pregnant?
I just ask as although I am feeling MUCH better after removal my anxiety still creeps in at certain times of the month and I am just trying to piece together the puzzle of why. [End]
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Hi,
I also have been getting really dizzy during my period over the last couple of months. Have you had you hormone levels tested?
I was starting to wonder if it is to do with low oestrogen levels or iron deficiency (as I cant see why else it would occur at that time of the month). [End]
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HI Suzanne,
Yes I am feeling generally much better although a little off the last few days, not depressed just not myself and I was doing sooo much better....still I think it could be due to the fact that I have just have the flu and AF at the same time. Interesting what you said about the progesterone. I have read the same thing about oestrogen receptors, which I think could be relevant as estrogen (and progesterone) are needed to make serotonin. It is sooo frustrating. I wish someone would just be able to say dont worry give it a year you will be fine!
Any idea how we are meant t ...
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Interesting info
low estrogen - premarin?