How DO you get good bacteria on lips?   [End]
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why is his condition very different from yours?   [End]
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hey everyone i’m a 19 year old girl, who got a skin disease one year ago. my disease, gives my skin chronic inflammation, i’ve been depressed and it’s been hard since i’m so young and used to have a social life, full of travelling but now i cant even go out the house because i look horrible. now this is a really rare skin disease, so the doctors don’t know how to cure this. BUT there have been reports of other people who have been cured, so this is not permament, it just takes time to heal/finds what will heal it. i believe in jesus christ as my saviour and i’ve been praying and praying, b ...
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it’s not yeast after time the skin just becomes yellow when it’s thick and exposed to air.   [End]
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lmaooo i’m happy for you my nigga, i’ve had this condition for 1 f***ing year now!! and can you imagine it’s harder beeing a girl, with also big lips who makes the disease more noticable. my lips started out just like yours. they were dry and peeling, and i kept peeling the skin on lips. i even peeled my upper lips so that it became pink,and no longer brown. i don’t think this will work for me since my lips are so f***ed up right now, like their is no layer left of normal skin. anyway god bless   [End]
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yes its funny as f***   [End]
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same here i kinda mis my oily skin too, i hate my dry skin now   [End]
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i got this condition to from isotretonin. f*** dermatologist why dont they tell you this   [End]
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atleast post lips pics   [End]
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why don’t you go get it your self and inform us instead of tellilng others to do it?? youre ugly   [End]
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good luck!!! we’re all cheering for you!   [End]
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what is LS? seem to me that all of you have alot of sickness, compared to to for example who isnt sick but only has EC   [End]
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it’s probably scam   [End]
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they look great!!1 your so close to healing! the vertical lines will come once the peeling has stopped don’t worry about it! :)   [End]
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how are your lips today?   [End]
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there’s something suspusiocous about her   [End]
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tergot congratf***ilation!!!!! live life now!!!!   [End]
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Daniel can you explain for us exaclty how/the schedule for the use of your steroid cream. and exactly for how long you used it.   [End]
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you will be healed in time, your inner lips just take longer to heal than your outer lips since its always in contact with your saliva.   [End]
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he also said that the sun helped him alot as in decreasing the inflamamtion. also he does talk about his inner lips during his healing when he said he used to get slightly buildup that he wiped off. this was during his treatment and when he declared that he was finally cured he didnt get any build up at all i guess.   [End]
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I only speak english. And IF you are cured get the f*** outta here   [End]
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I REMember he said in his videos that he used the steroid cream two times a day for two weeks, then two weeks off. then the same thing for 2-3 months, until he only used the steroid twice a month, then once a month, until he didnt use it anymore. if you suddenly stop using the steroid cream in can get worse. also you should use it less and less more, thats what daniel miller did. its not good to constantly use this cream, or randomly...   [End]
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i went to the bastu, all the skin on my lips peeled off and everything got worse. i am now using a new steroid cream and my dermatologist is thinking of putting me on imuran after 3 weeks.   [End]
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so fordyce spots is your only problem?   [End]
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there is a cure for EC, this is not a chronic disease because if so different people wouldnt have got cured. AIDS or DIABETES is a chronic disease because no one have ever got cured from that. EC though many people have. when we say that EC is chronic does not mean that we will have this for our whole life, it just means it takes time to heal. f*** outta here with that negative bullshit you’re talking about.   [End]
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SO daniel in one of your videos, the one you filmed during midnight you said that you sometimes still got slightly buildup if you didnt go out in the sun. was this during your healing treatment, or does it count as after you healing? also was it during the moisture method, that you used steroid cream? or did you also use it during your ”leave completely alone for 1.5 years” period? love u between hihi   [End]
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no, in his latest video he said he said after he got cured he had the ”other stuff”. which is probably buildup as he stated in his previous videos that he had, even though he was cured without peeling.   [End]
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i cant believe you were in this forum for so long, without founding a cure...   [End]
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DANIEL MILLER, you said in your youtube video you got cured after 1 year (11 months),but then in your video you said you had one year of the ”other stuff” which you didn’t quite explain. what did you mean you had 1 year of ”the other stuff”?? also during these years did you stay out in the sun all the time? you said you lived in californa did you have access to the sun 365 days a year?? i live in scandinavia and here i have sun 3-4 months a year....so its really hard for me to get cured :( i can’t move to another country i’m only 19, and just started university.   [End]
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yes using saliva is fuccin bull shit!!!   [End]
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what yall are saying is all bs   [End]
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i know daniki got cured, with no sideeffects and my EC was similiar to hers...so i will try it within a month when my doctors back   [End]
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yes, she said she will run all kind of test before giving me imuran.   [End]
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its always you tiger that answers this thread hahahah😂😂😂😂. im asking because my brother has diabeties type 1 and my sister SLE (both autoimmune diseases)....plus im very skinny/thin/weak and therefore scared it will affect me even more.   [End]
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IM becoming more sceptic about using imuran because of the side effects...im having a kind of deja vu, and thinking when i was sceptic about using accutane (which i did) and resulted in such a horrible disease as EC. what side effects have yall EXPERience from imuran,JSL WHAT ABOUT YOU??!?!?1 for example did any one experience hair loss? i have really beuatiful thich curly hair, therefore im really scared. plus both my siblings have autoimmune diseases therefore will you think that the siede effects for me will be bigger?   [End]
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I also took accutane for3 months april-july2015, and during this time my lips were really dry...they return to normal afterwards for like 5 months...the winter came and my lips were more dry than ever because of the use of accutane months before, my skin were also reallllyy dry , expecially my forehead was flaking...so i really think this is related to accutane which means i will finally get cured (even though it will take time). i noticed that some people on here though arent like me, theyve had problem with their lips their whole life, and dont know how it started. So i would say ...
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I also took accutane, and during this time my lips were really dry...they return to normal afterwards for like 5 months...the winter came and my lips were more dry than ever because of the use of accutane months before, my skin were also reallllyy dry , expecially my forehead was flaking...so i really think this is realted to accutane which means i will finally get cured (even though it will take time). i noticed that some people on here thought arent like me, theyve had problem with their lips their whole life, and dont know how it started...so i think youre right on that one So i ...
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you better watch out, i was once like you my lips looked like yours and i kept peeling and they ended up going much worse. just saying   [End]
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lily post a pic!!! seriously is not hard, stop trynna use it as a reason to not post pic of your lips! we wont be able to see your face anyway so whats the difference!   [End]
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thank you so much!   [End]
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IS THERE ANYBODY THAT HAS CONTACTED DANIKI??!!??!?! ON HER IMURAN TREATMENTAND IF SHE WAS FULLY CURED AFTER THE TREATMENT??!?!? I NEED TO KNOW BEFORE I START!!!! ALSO iS THERE SOMONE WHOM USED IMMUNSUPRESSIVE IMURAN, WHAT IS YOUR EXPERIENCE PLEASE SHARE!!!   [End]
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So i went today and MET different dermatologists, they discussed My condition and came to conclusion that i First DO a lip biopsy so they can make sure its EC and EXACTLY, but Also IF i have a intestinal disease. Afterwards she say Shes gonna put me on imuran and Will prescribe me a strong steroid cream thats usually prescribed by dentists to use for inflammation inside mouth. Im really scared i’ll get a big scar from the biopsy and that they Will find nothing. Any of you WHO did biopsy and was left with a scar/or not? Also i maybe Will tell her to change the steroid cream to mediu ...
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I think though her biggest issue is her leads get inflamed for NO reason. I remember she school hands with Someone WHO had a really firm grip, and het hands became inflammed and swollen for 3 weeks!!! With pain!!!!   [End]
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NO but my brother have diabetes type 1. I was tested for SLE, i Didnt have IT. Me and her were vaccined alot of Times’ for tuberkulos, ”red dog” i think hepatit A and B, yellow fever and i dont remember more.   [End]
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Hypotyreos, SLE ( systematic lupus erythematosus) and sjogrensyndrom   [End]
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jsl123 what happened to your imuran treatment??!! how did it go, are you cured? please inform us since danikis didn’t uppdate us on this shit!! My sister is taking cortisonoral, for a heart muscle inflammation she has. she uses got this because of her autoimmun disease, her immune system is not working correclty. and shes practically begging me not to take this imuran, as she is scared it will harm me. also do you think she is fully cured?? i mean since shes not back at the forum again she must be cured?? PLEASE ANSER jsl123 !!!!   [End]
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it is not hard to upload pictures oon this forum before and after, you should still do it. it will also help others so we can see if our lips used to look, like yours and therfore use this method to be cured. so unless you dont post before and after pictures, we cant tell for sure if your cured or not, maybe you didnt even have EC. please post pictures1!!   [End]
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longterm i have a question, are you cured from EC, how long have you had EC, and how did it start?....   [End]
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they smelled like fart mine kinda...   [End]
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I dont really think thats the case IF IT was still in My system i wouldnt be allowed to drink alchol, but My dermatologist Said that i could drink alcholol three weeks after accutane. I f***in hate that i took accutane, IT has left My skin dry, IT have gave me pimpels that wont go away My skin were much Healthier and smooth BEFORE accutane. PEOPLE NEVER TAKE AVCUTANE.   [End]
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i think it was the opposite, because my accutane (real name isotretnin) was filled with A-vitamin that made my skin and lips dry. as soon as i stopped with the treatment and the excessive vitamin A went out of my system, my lips went back to nomal for six months until winter time in Sweden came.   [End]
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he said he did shower normally and letting water touch his lips when he rinsed his face or hair.   [End]
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Its a common issue amongst accutane users??? what i dont understand though my lips were fine after the 3 months treatment of accutane for over 6 months, it all happanend so fast!!! i swear if i didnt live in Sweden this would never happened, because this f***ed up winter was the coldest on we’ve had for over 20 years, i f***ing hate this country and now winter is coming again i dont know how will manage f***in cunt winter.   [End]
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Actuully i did a blood test like 6 months ago and there was nothing wrong. no iron B-vitamin defiancy or whatever. but i have an iron defiency as usual and had it because have a heavy menstrual flow so i dont think that has somthing to do with my EC at all. i’ve had iron defiency for years without peeling lips. my dermatolgist wants to meet me two months from now to see if im progressing, becuase she says i might have chrohns disease. it can be possible since my siblings suffers from disease like diabetes type 1, SLE, lupus, Hypotetorus, sjogrens syndrom...which makes her skin, lips, mout ...
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i Understand, and i apologize for what i said earlier. I was just trying to say, whenever i wash my face or whatever i let the water touch my lips, just like i used to do when my lips were normal! im not addicted to put water on my lips to keep them moist, i can go on for a long time and like 2 days without putting aquaphor or water on them, becuase i noticed that they no longer need as much water and aquaphor to me moist.   [End]
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exactly!! i did the exact mistake like daniel milller to leave th crust completely alone for 3 months, which didnt worked...it was after i started daniels moisture treatment that i saw improvement.   [End]
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My crusting used to smell when they were thick, nit anymore though.   [End]
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LIKE WTF???!! Read My post BEFORE you f***ing comment, im not only using water geeze!!! Im using aquaphor and havent peeled My lips for 4 months!!!! I never Said i only use water ok!!!!! I just Said water has hepled My condition and now i dont use IT that often same about aquaphor because My lips are more naturally moist. Longterm for how Long have u had EC and how did IT start??? Maybe this works for me because i’ve only had extreme EC for 5 months and never ever used to have problem with My lips in My life, compare to other people WHOm had peeling, dry and cracked skin since they were kids.
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I Will never leave without TELLING how IT went ;)   [End]
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I Apply water on lips. My lips haveto touch water for over 4 months IT was horrible, they felt stiff, dry and were inflammed. But as soon as i Apply water to them the get a little moist alone with aquaphor. Since Then My inflammation has gone down alot. You cant avoid water not to touch your lips, ofc when im healed They Would still get water in the shower etc...water is moisture. Ofc though you cannot just use water but a lip balm too. REMEBER Daniel Miller he Didnt avoid water from touchens his lips, and he still got cured.   [End]
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no i still live in bloody sweden, same place. why you ask?   [End]
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Thank you, it just makes me angry everyone here has no hope!! that their is a cure, and a way to be cured from exfoliate chelitis...   [End]
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im getting angry because i don’t want to listen to negativity!!!! People that tell me it won’t worked just because they are not cured. thats why i am angry. if he was the one seeing progress, he would be happy and filled with optimism..but since someone else is on their way of getting cured they talk shit, and spread negativity. Thats why im angry beuacse they are selfish people.   [End]
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Clearly youre just dumb, or cant see that im progressing through the pictures . Gaaahdd this disease have left as all with a negative mind, that we cant be cured. Well My EC is probably different from Yours which mean that i heal differently.   [End]
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I dont think you understand the My lips are getting better everyday. And yes ofc they need water sometimes all lips DO. The skin that is under the peeling is normal, smooth skin that doesnt Come off with water. Plus i dont use water to take off the peeling i just use IT to moisture IT. My lips are more elastic, less inflammed, and i can now smile without the skin cracking. i dont see why you gotta be so negative about it just because you think you cant be cured from EC, doesnt mean other people can be cured. Anyways youre gonna see me from some months now, i’ll be cured and you’ll still go ...
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from april to june in 2015 i took isotretononin to get rid of my acne. during this era, my lips were really really dry and some swollen…still my skin on lips weren’t flaking…and so the last date of june i stopped this treatment…three weeks later my lips were back to normal. I had normal lips throughout the whole summer. In novemeber I started to notice that my lips were really dry, I bough chapstick from the pharmacy that I always use when my lips were dry (and they always used to help) somewhat they didn’t work. Novemeber, December to mars were really cold (Swedish winter lol) and my lips ...
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THATS EACXCTLY LIKE ME!!! SINCE I GOT MY FIRST PERIOD (12, IM 19 NOW) ive gotten my period severel times per month. this has been going on for years...and when i asked my doctor whats wrong she said it is because my hormones are instabile. I DID A TEST WHICH SHOWED THAT MY ESTROGEN LEVEL IS MUCH MORE HIGHER THAN MY PRESTOGENE. DO YALL THINK THIS IS RELATED?? OFC BUT WHY DID IT APPEAR NOW AFTER ALL THESE YEARS??? PLEASE ANSWER   [End]
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i wish i could by some without my parents noticing or going to jail ./   [End]
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You know why IT comes back stronger/worse? Because you stopped using IT suddenly. My doctor Said you have to stop using it by lets say you use IT everyday for Two weeks... Then you use IT 3 days a week for two weeks... Then three... Etc... The. As time goes on you Will stop using IT at all.   [End]
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Daniel Miller got cured that way, he used steroid Cream and aquaphor plus Didnt peel the skin.   [End]
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You Didnt show us what youre lips looken like BEFORE taking probiotics, how the FU ck are we supposed to compare with??   [End]
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PLEASE TELL ME ARE YOU STILL ON THE MEDICATION??? Are youre lips normal now?? Can you wear lipstick as usual??   [End]
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I must say that the leave alone made My lips inflamed, they are constantly hurting, red, swollen and Tasted like blood and i trult believe its because of the massiva crusting i have. im on week 2... Are the lips really suppose to be swollen??   [End]
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Healthy lips have Theree lagets of skin not ten!!!! Google it   [End]
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HELLO WHERE ARE THE PICTURES?!!! Why are people so afraod to show pictures of Their lips?!!! Its not like we can see WHO you are just f***in show Them so we can be sure IT hepled!!!!!   [End]
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Post BEFORE and after pics PLEASE......   [End]
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Could you PLEASE show us BEFORE and after pictures?   [End]
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what happened?!! did it come back??!!!   [End]
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COULD YOU PLEASE POST PICTURES SO WE CAN SEE YOUR BEFORE AND AFTER PICS. we still need prove...   [End]
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I called UP and askes My doctor and he Said that the bacteria i had on My lips is called stoph/staph. Normally this bacteria exist in out skin and is not harmfull, but in My case the lever of this bacteria was too high THAN normal which is why My lips were constantly peeling the bacteria was attacking the skin from to grow back normally and heal properly. Thefore i was prescribed antibiotics oinment. Im on day There and Will keep you updated when My treatment is over (5days left)   [End]
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But What IF My lips were just normally dry due to the weather and the lipstick made IT worse since IT contained bacteria. Thats possible since i dont know WHO tried that lipstick on, since IT was a test lipstick anyone with ”unhealthy” lips Could have used IT and spread Their bacteria to me. Anyways i’ve ONLY used the antibiotics for one day i’ll keep you updated.   [End]
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So i dont have EC but secondary dermatitis? Why DO you think that? And Also DO you think i should call My doctor and ask him IF really was bad bacteria on My lips, or DO you think i should finish this bacteria ointment treatment First? It’ just that im so scared IT Will get worse😖 Would really appreciate answers   [End]
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Where you live? And you need insurance First? That sucks herr in sweden health care is free until youre 25, thank god for that or else i wouldnt know i had bacteria. I hope IT really works out for you and yes i’ll keep you updated.   [End]
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Sorry There are alot of wrong spelling due to My phones, autocorrect. But i hope you find something for your EC that works.   [End]
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So glad that i have Someone to relate too. I feel like especially now around out age its Hard for is to hope with this condition. But i Also think that you should visit the doctor and check for yeast infection or bacteria as thats WHAT i did and hoping to get cured Also with this antibiotics ointment. Im just so mad i peeled My skin 😖 Maybe now IT Would be easier to treat Them. I hope you get Will soon. NO i dont have Xbox, and thank you so much for your support💙💙💙   [End]
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Hey everyone im new to this forum and have been suffering from Exfoliate chelitis for 6 months. Im certain that this is EC (see pics below) . Ok so First i want to tell you My story. I live in Sweden where Winters are REALLY cold, specielly this winter was extremely cold. In november 2016 i started to notice that My lips starter to get dry because of the cold/dry air. But i thought IT was nothing. IT wasn’t untill december when i tried a lipstick at a store that the symptoms really started. The same day i sent to a party, and the next day when i woke up i noticed My lips were extremely dr ...
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