It has definitely been mortifying. Presenting yourself as a professional and having this problem was very very difficult. Especially being and adult and working with both my peers and youth and children. Imagine them smelling all that and I couldn’t even begin to tell you what it was since I was nose blind to it. Other than what I have written, please read up on gluten and it’s effect on the body and see if it’s something you may want to eliminate from your diet and see the effect, just from a lay mans point of view. Wishing you all the best.   [End]
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I don’t know if you are still referring to this post. Allow me to make a suggestion to you. Read up on the effects of gluten and try eliminating any wheat and wheat based products from your diet and see how you feel. I realize everyone’s situation is different but one has to try different things.I know that most peoples diets have a lot of wheat, read labels or use your own knowledge of food and avoid it. I’d say give it a minimum of 3 months and if any of your symptoms abate stick with it.Try to be as strict with yourself as possible. There is a large variety of foods so other than missin ...
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It’s hard to give a time frame for improvement because all I have ever had to go by is peoples reactions, and no doubt you have found that people can be incredibly polite, eventually you got to know though. I’d say about a week or so, but that’s just a guess, I always wished I had a more objective opinion, but by family is nose blind to me, and I felt it difficult to ask other people directly. There were individuals who made it known in no uncertain terms though and the day I walked it and heard them whisper ”it doesn’t smell of anything today” I was ecstatic. Shortly after this I ran out ...
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Like most of us out there, it has been a matter of trial and error without a lot of help from anyone. If you like you can click on my id to see previous posts as I struggled along. I have tried many, many things. Long and short of it, I seemed to notice improvements (judged by peoples reactions), slowly as I tried different supplements. The other thing is that when I ran out of particular ones and failed to replace them, the reactions came back. The essentials I am down to are Zinc (must be an available form ex. picolinate, citrate, orotate etc ( 30 to 50mg per day), Vitamin B6 in the fo ...
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I was as puzzled as you. Was it my clothes? I started to change everything every single day.Was it my skin? There is no antibacterial soap and shampoo I have not tried. I even went to the extent of equipping a small storage area that had a sink at my job, so I could clean myself up at mid day. I would have a sponge bath at mid day, I got a mini fan to help me dry off in a hurry, I equipped it with antibacterial wipes, deodorant, toothbrush and toothpaste, body powder, and body sprays. Imagine the stress everyday of wondering when I can sneak off to wash up. I set up every kind of air fresh ...
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Hello All I hope this is helpful to someone. Google pyroluria. There’s a lot of information on the web that may be useful to you. Thanks   [End]
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Have you tried zinc containing toothpaste and mouth wash? Don’t forget using a tongue scraper too.   [End]
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Hello all To all to whom this may be helpful, please google and read on Pyroluria. There’s quite a lot of information available on many websites, please have a look. Thanks   [End]
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Sorry I meant to say that the mouthwash is available from Walmart, but I buy the other products online. Please update if this works for you.   [End]
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Also continue to use the tongue cleaner. I use one from therabreath, it takes getting used to (be very gentle to begin with), but it works very well.   [End]
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Please try smart mouth toothpaste and mouth wash. The also have mints. The mouthwash is available on line, but the other products you have to buy online. The important thing is that it should be a zinc containing product. Alternatives are also available that contain zinc.   [End]
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I hope you can try out some of my suggestions and see if they work for you.   [End]
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I now use regular deodorant. I have gone through using those clinical wipes that last for more than a week (one application), I have used everything you can imagine including chlorophyll which is supposed to be an internal deodorant. Regular is OK now.   [End]
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When I first acknowledged that the comments I heard were directed at me I had no idea what to think. I did what everyone else did, shower, change clothes, brush teeth, use deodorant. I was in shock when after all the years of assuming the comments were directed at others, I realized it was me. I have already posted what I am currently doing that seems to have given me great improvement, you can search using my name. The thing though that it was only last year that I realized my breath had anything to do with it. I started working in a mobile situation where I moved from place to place, and ...
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The reason I asked is because these are some of the things that seemed to resolve as I experimented and settled on ways to handle the problem. From the comments I overheard, the smell was horrific. Worst part was I had what in every normal person would be normal hygiene practices, and when I even took it up a notch I had zero results. It was crushing and weighed me down. I stopped socializing, going to church etc. The first time I noticed some reduction on comments, I had started on caprylic acid / coconut oil. And the strange thing I noticed once I started on it was gobs of thick mucus s ...
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Some Questions for you. When you wake in the morning do you have to cough up mucus from the back of your throat? Do you have post nasal drip and need to cough or spit it out in the course of the day? When you brush your teeth in the morning is the the spit our excessively slimy? Do you have problems have slightly bloody mucus out of your nose even when you’re not having a cold? when you look at your tongue, does it have some whiteness to it? If you leave the room you slept in and go outside for a while and come back what does it smell of? Do you have a dull ache in your teeth and or ears? ...
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Some Questions for you. When you wake in the morning do you have to cough up mucus from the back of your throat? Do you have post nasal drip and need to cough or spit it out in the course of the day? When you brush your teeth in the morning is the the spit our excessively slimy? If you leave the room you slept in and go outside for a while and come back what does it smell of? Do you have a dull ache in your teeth and or ears? Does your skin itch? What about bm? any constipation?   [End]
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Hello all I have so much to say hardly know where to begin. I’ll try to keep it to basics. I have had the same problem as many of you and though I had the problem for many years (apparently) it was only in 2013 that I accepted that it was not a personal hygiene problem. I’ve gone through all those comments ”what’s that smell? It smells like a..s, smells like sh..t, musty, throw up, it stinks in here! ” etc. My first reaction was change soaps, bathe in the middle of the day (yes I brought supplies to work and would sneak away for a sponge bath.. the stress!). I bought every antibacteri ...
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Hello all I have so much to say hardly know where to begin. I’ll try to keep it to basics. I have had the same problem as many of you and though I had the problem for many years (apparently) it was only in 2013 that I accepted that it was not a personal hygiene problem. I’ve gone through all those comments ”what’s that smell? It smells like a..s, smells like sh..t, musty, throw up, it stinks in here! ” etc. My first reaction was change soaps, bathe in the middle of the day (yes I brought supplies to work and would sneak away for a sponge bath.. the stress!). I bought every antibacteri ...
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Hello. I’m hoping that by now your problem has been resolved. If not, I have some suggestions for you. Try eating 1-3 tablespoons of virgin coconut oil. You can read up on details online. You can start with little and then build up. Zinc supplement - try 30-50mg of chelated zinc supplement. Not zinc oxide etc. How is your BM? do you get constipated alot? Do your suffer from heart burn? Use a good quality digestive enzyme and probiotics. Magnesium will also help to loosen BM - but enzymes alone will probably work for you. Next. Use a toothpaste and mouth wash that contain zinc. Smart mouth ...
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I have often felt like a doctor trying to treat a patient on the moon from earth. Yet I am my own patient. I can’t smell myself so I can’t tell when my efforts are paying off or not, except to rely on other peoples reactions which are not always reliable because people will be polite (except when they’re not).It really is hard and even when you ask someone directly, I’ve learned that most feel obliged to tell you everything is OK. But oh the embarrassment of the overheard comments! Can’t win for losing!   [End]
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I have tried the NOW brand. It seems to work well.I usually do my product research on Amazon because there is a lot of feedback from customers, then you can buy wherever, but Amazon tends to be more cost effective.   [End]
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Please have patience. It has been a long struggle for many of us. Please continue to read on peoples experiences and experiment. I know it’s hard and many times I have been so disheartened. It takes time for most of us. I wish I instantly knew the path to take but it’s been trial and error all the way with zero help from my doctor. There are many sailing in the same boat as you. Hang in there!   [End]
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You could try magnesium supplement if betaine Hcl is not available locally. Also add plenty of veggies and water.   [End]
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Please don’t give up. Since your father can smell you, please show him this forum. By reading it, he will see you are not the only person with this problem and he will see other peoples effort to find a solution. If a doctor is not helpful as some of us have found use the information on this forum to try and find a solution that will work for you. It is important to have his help so he can buy you some of the things you may wish to try. It took me a very long time to realize that my personal hygiene had nothing to do with my problem. Please check to see if my posts will be helpful to you. ...
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Have you considered using digestive enzymes? Magnesium supplements have helped me alot with constipation. If this is addressed and you still have the problem, then you can consider other options. But its impt to address the constipation. I am looking for dietary ways to address it but for now the above are working.   [End]
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Part 3 Here is a list of some problems that I had that I never associated with my problem. 1. Frequent Heart burn – I carried Tums on me and kept them at work 2. Frequent itching on legs, arms and back (antihistamines were a must in my purse) 3. Waking up with hangover like headaches 4. Slight ear aches 5. Slight pain when clenching teeth. 6. Frequent night urination (going up to 5 -6 times in the night) – I remember thinking to myself that I must have very efficient kidneys 7. Light headedness.. like feeling zoned out (foggy mind) 8. When brushing my teeth in the morning I notice ...
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Please see my part 2   [End]
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Part 2 As mentioned above, even though I had heard my body odor described as above (including weed, throw up..etc) I had never smelled it myself. I tried all ways to smell myself, my clothes, a room I just left, but it always smelled fine to me. It was only after using the Coconut oil that I realized how my body odor smelled. Now my habit after I wake up is to go down to the kitchen and start my breakfast. When I came back into my bedroom it would have this horrific smell, probably like a sewer. Since my husband loves to eat food that gives him gas, I always assumed that the smell was fr ...
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My experience I have been a lurker here for close to a year. Thank you to all who share their experiences so that others might benefit and or be encouraged to keep searching. Hope is such an important thing in any difficult circumstance. I hardly know where to start. Like most people here I was came here looking for help after hearing those humiliating comments about “what’s that smell?... smells like s…t in here, smells like booty, fungus, garbage, musty, dirty shoes… you name it. How mortifying and crushing. My initial response was to try cleaning myself even more than usual. Practicall ...
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When you say salad...what do you mean? Lettuce, cucumber? tomatoes? carrots? onions?   [End]
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OK, I’m back. I’ve decided to write about my experience from a historical perspective because maybe it can help others who are just coming into this problem to recognize things that did not click for me until much later on. The problem – Apparently I had horrific body odor. I say apparently because I never smelt anything and to this day I cannot tell you with any certainty what I smelled of except I will repeat what I heard. The comments began with “what’s that smell? It stank (sp) in here! It smells (variously) of “socks”, “throw up”, “garbage”, “musty”, “dirty ass”, “a dead mouse” “w ...
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Hello to everyone on this forum. I just want to thank you from the bottom of my heart to all the people who post here on this very difficult topic. This became my go to website along with surfing other websites when I began to research on how to best help myself out of this condition that is so socially debilitating and humiliating. Everyone who posts here is a resource to more people that you can ever know. As most of you have come to find out there is no one and particularly, no Doctor who will do the amount of research that we put into finding a solution to this problem, that is if the ...
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