i just spent two hours looking for your post because i forgot to bookmark this last night. we are suffering with the same issues, so we must communicate.
i don't even know where to start. i was up all night trying to stop the squirming in my ear, and fell asleep before i finished. my ear is totally blocked now. my ear canal is like swiss cheese, with the holes leading to various places in my head. the cartilage in my nose and outer ear is flabby and makes a clicking noise when i move them. i hear a popping in my brain if i move too quickly. i cannot lean over or my eyes fill up with thousands of particles. these are a few examples of my plight.
i have to post this as is, as i have been called away, but i will be back.
you are not alone